Re: new group and website
Group: alt.support.alzheimers Date: Thu, Feb 17, 2011, 7:08am (PST+3)
From: ***@gmail.com (Evelyn)
On Wed, 16 Feb 2011 10:30:47 -0800, ***@webtv.net (EddyJean) wrote:
Hi Sam,
I'm so sorry to hear about your father and what you and the family have
gone through. Unfortunately, this disease destroys many families because
doctors know little to nothing about it. Its the viruses that are
killing us but too little serious research on facial/cranial diseases.
It takes numbers to get politicians to listen that we desperately need
research on viruses that cause these neurological diseases. Moebius
Syndrome is an organization primarily for the young with cranial/facial
diseases. You may want to contact them too. I wish you the best.
EddyJean
Eddy Jean is a troll and her information is made up. Don't believe me,
check for yourself. =A0 There is absolutely NO evidence for her wacky
theories.
Evelyn
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Sam---
Thank you for sharing your story. I have the disease too and can
identify with what you and your family have gone through. Please don't
pay attention to Evelyn's comments. She picks on me all the time but
never has anything to back up her statements except criticize. A trouble
maker. The late Dr. James Ramsay Hunt (an icon) already discovered in
1907 the virus that causes facial/cranial diseases, why doctors did not
follow up on his work is a mystery. Dr. Hunt wrote books but
disappeared. The father of neurology in the United States; yet, few know
about him. Doctors all know about the late Dr. Bell, discoverer of
Bell's Palsy in the 1840s from Scotland, but know nothing about one of
our own great American doctors, Dr. Hunt. Wouldn't you say that's a bit
strange?